We work with a range of stakeholders at a local and national level, providing information and expertise on young people with cancer. This includes work with Parliamentarians, commissioners, civil servants, professional bodies and other charities to influence decisions so that these decisions improve the lives of young people with cancer and their families.
In Parliament, our team is based throughout the UK and meet with ministers and representatives from a spectrum of parties, provide briefings for debates, table parliamentary questions and host events to showcase the need for support for young people with cancer.
In Westminster we’re part of the stakeholder group which supports the All Party Parliamentary Group on Cancer. The group brings together MPs and Peers from across the political spectrum to campaign together to improve cancer services and debate key issues affecting cancer patients and their families and carers. As part of this group we’re involved with Britain Against Cancer, the country’s biggest cancer policy conference.
We work with MSPs, Cabinet Secretaries, Committees and the Cross Party Group on Cancer in the Scottish Parliament. We work closely with the Detect Cancer Early Programme which seeks to improve survival by diagnosing and treating cancer at an earlier stage.
In October 2013 Aileen McLeod MSP led a parliamentary debate on the issues young people with cancer in Scotland face. The debate was followed by a parliamentary reception in November, where Alex Neil MSP, Cabinet Secretary for Health and Wellbeing, delivered a keynote speech. Both events highlighted the importance of educating young people, parents, teachers and health professionals about the common signs of cancer in young people so it can be spotted early.
In March 2014 we gave evidence to MSPs at the Health and Sport Committee’s hearing on transition between paediatric and adult services. We made the case for age-appropriate services for teenagers and young adults, including specialist staff, being key to a successful transition.
We work in coalition with other cancer charities in Wales to influence legislation and keep cancer on the political agenda. We regularly host visits from Assembly Members to our flagship Teenage Cancer Trust unit at University Hospital Wales in Cardiff.
We’ve met with the Minister of Health, Social Services and Public Safety, to talk about the importance of specialist care for young people with cancer. We’ll continue to work with the Northern Ireland Executive and in coalition with other charities to support their work on early diagnosis and outcomes from health services that are important to young people.